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About 65 Roses Day

Each May the 65 Roses Month, focusing on Cystic Fibrosis in Australia to highlight the growing need for awareness about cystic fibrosis (CF). It’s called 65 Roses by children with cystic fibrosis (CF) because it is easier to pronounce, (kind of like when a child says ‘butter footed’ instead of ‘bare footed’. The name stuck and is now the official nomenclature for Cystic Fibrosis.

Throughout May in Australia volunteers and people with CF and their families unite to help shine a spotlight on what CF is and the progress being made toward a cure.

The United States also observes Cystic Fibrosis Month in May.

Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that:

Clogs the lungs and leads to life-threatening lung infections; and

Obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food.

In the 1950s, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical treatments have further enhanced and extended life for children and adults with CF. Many people with the disease can now expect to live into their 30s, 40s and beyond.

The symbol of Cystic Fibrosis is the 65 Roses Campaign.

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