NEUROPATHY AWARENESS WEEK, NTL.
About National Neuropathy Awareness Week
"In 2004 the Neuropathy Association created National Neuropathy Awareness Week to focus on patient care, research and cures. In 2014 in partnership with ResearchMatch they introduced a new patient registry dedicated to improving and expediting neuropathy research.
Volunteers who register and indicate “neuropathy” as one of their conditions will be prompted to answer additional questions about their condition to better enhance the precision and prescreening process for matching volunteers with research teams who are studying all forms of peripheral neuropathy.
Peripheral neuropathy, or “peripheral nerve damage,” impacts over 20 million Americans making it one of the most common chronic diseases and a leading cause of adult disability. Neuropathy disrupts the body’s ability to communicate with its muscles, organs, and tissues. Symptoms can include numbness, tingling, weakness, and pain often beginning in the hands and feet. With early diagnosis, it can often be controlled and quality of life restored. If ignored, symptoms can intensify to loss of sensation, weakness, unremitting pain, and/or disability.
“Patients and researchers alike are frustrated with the slow progress being made with neuropathy research. Patients feel disenfranchised from the current clinical trial process because they are still unable connect with the research and researchers addressing their specific health issues,” shares Tina Tockarshewsky, president and CEO, The Neuropathy Association.
“A significant factor delaying the development of new treatments is the recruitment and retention of clinical research study participants—both patients as well as healthy volunteers,” notes Natacha T. Pires, MBBS, director of medical and public affairs at The Neuropathy Association.
The registry system seeks to solve this problem and it kicks off Neuropathy Awareness Week 2014.
Of the over 100 known types of neuropathy, diabetic neuropathy represents over a third of all neuropathies, making diabetes the leading cause. A third of neuropathies are “idiopathic” (unknown cause). Other neuropathies include autoimmune-related, hereditary, cancer or chemotherapy-related, entrapment or trauma-related, and neuropathies related to causes such as toxin-induced, nutritional deficiencies, gastro-intestinal disorders, metabolic diseases, or infectious diseases (including Lyme and HIV/AIDS).
Access the new Registry Here: http://www.neuropathy.org"
Volunteers who register and indicate “neuropathy” as one of their conditions will be prompted to answer additional questions about their condition to better enhance the precision and prescreening process for matching volunteers with research teams who are studying all forms of peripheral neuropathy.
Peripheral neuropathy, or “peripheral nerve damage,” impacts over 20 million Americans making it one of the most common chronic diseases and a leading cause of adult disability. Neuropathy disrupts the body’s ability to communicate with its muscles, organs, and tissues. Symptoms can include numbness, tingling, weakness, and pain often beginning in the hands and feet. With early diagnosis, it can often be controlled and quality of life restored. If ignored, symptoms can intensify to loss of sensation, weakness, unremitting pain, and/or disability.
“Patients and researchers alike are frustrated with the slow progress being made with neuropathy research. Patients feel disenfranchised from the current clinical trial process because they are still unable connect with the research and researchers addressing their specific health issues,” shares Tina Tockarshewsky, president and CEO, The Neuropathy Association.
“A significant factor delaying the development of new treatments is the recruitment and retention of clinical research study participants—both patients as well as healthy volunteers,” notes Natacha T. Pires, MBBS, director of medical and public affairs at The Neuropathy Association.
The registry system seeks to solve this problem and it kicks off Neuropathy Awareness Week 2014.
Of the over 100 known types of neuropathy, diabetic neuropathy represents over a third of all neuropathies, making diabetes the leading cause. A third of neuropathies are “idiopathic” (unknown cause). Other neuropathies include autoimmune-related, hereditary, cancer or chemotherapy-related, entrapment or trauma-related, and neuropathies related to causes such as toxin-induced, nutritional deficiencies, gastro-intestinal disorders, metabolic diseases, or infectious diseases (including Lyme and HIV/AIDS).
Access the new Registry Here: http://www.neuropathy.org"
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Event Sponsor:
The Neuropathy Association
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